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w closet×JUGEM

「聴くこと と 聞くこと」

「聴くこと と 聞くこと」1 「プロフィール」

私は、水頭症を合併した二分脊椎症者として、生まれました。
移動手段は、外出時は就学直前ぐらいから手動車椅子を利用。高校在学中からは、元々、手動車椅子の操作が下手だった事や、行動範囲を拡げる事を考えて、電動車椅子に切り替えています。自宅では、ぎこちないハイハイを長い間していましたが、2009年に急激な運動機能の低下をして以降は、ずり這いをしています。

学習面では、通園施設と幼稚園・保育園を経て、義務教育は身体面を重視して特別支援学校に、高校は社会生活への準備期間として一般校に在籍しました。
様々な症状を経験する事が、年齢を重ねるにつれて増加していっても、自分なりに、楽しむ日々を送っていました。予期せぬ体調不良や症状増加は、それまでも、周りの症者の方々と比較しても幼い頃から早かったので、この先もその点においては、変わりないだろうと思っていました。

ただ、聴覚を除いては…。
  • 2016.07.11 Monday
  • 19:11

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